Monday, March 31, 2014

W6GF

week 6 gluten free

What have I learned these past 6 weeks?

I have learned that this is hard.  I have gotten glutened (meaning I accidentally ate gluten) almost every weekend since my diagnosis.  Gluten is hiding everywhere.  Sometimes I think this is easy, no big deal.  Other times I think, this is really hard, how am I going to survive?  There is still a lot for me to learn, but here are some of my thoughts about this journey. 

Eating out is really hard.  I ordered a "gluten-free" dish the other night and low and behold it had 2 glutenous items screaming at me.  Another time I ordered a gluten free bun and my burger came out with a regular bun.  Even when I order gluten free stuff, I just have to hope it doesn't get cross-contaminated.  One time I got gluten free bread for a sandwich but they didn't change their gloves or use a different cutting board. And... I got sick. I don't want to be high maintenance and send my food back and at the same time I don't want to eat something if I know it will make me sick.  It's hard to figure out if the restaurant really gets it. Have they checked all their ingredients for gluten or have they just eliminated the bread items and think it's good to go?  I am trying to make a list of gluten-free-friendly places (after 6 weeks I have three) because they can be hard to find, harder than I thought. Eating out is definitely not as much fun as it used to be. 

I'm learning that free food is also not as fun as it used to be.  I used to live for that stuff.  Cookies, pizza, donuts just showing up at work or church functions was the best. Now I'm starting to understand that free food usually contains gluten. I used to scoff at the fruit and veggie platters at parties. We all know we come for the baked goodies. Now I am always looking for the fruit.  It's safe.

I am figuring out what works, trying not to eat the same thing everyday, and trying to keep my grocery bill under control.  At least we will be eating out less.  Any tips are certainly welcome!


Thursday, March 27, 2014

broccoli


i have had broccoli two nights in a row now.

what?!

even i am surprised. i had to force myself to eat it to earn points for a family competition and we were all out of green beans and spinach (for my spinach smoothies).  if i cover the broccoli in butter, salt, pepper, and shredded cheese and eat it with a bite of potato i can actually manage to get it down.  the first time was rough.  i almost gagged and i was making really interesting faces. it gets a little easier each time though. slow and steady i say.  maybe there really is hope for me.

what veggie should i work on next?


Tuesday, March 25, 2014

birthday girl!


HAPPY BIRTHDAY MOMMA!


you're a rockstar! and the best mom ever.
have a fun day.  i  love you!

Sunday, March 23, 2014

ripe bananas?


hey, us too!

so we made some banana bread even i could eat. 


and turns out
it's delicious!

gluten free baking can be a doozy and we certainly lucked out with finding the perfect recipe.  it's definitely a keeper.  bring on the ripe bananas.

Wednesday, March 19, 2014

I am

Round 2

I am learning what works.
I wonder if I will ever get there.
I hear whispers of uncertainty.
I see dreams coming true.
I want to fight for change.
I am learning what works.

I pretend to have it figured out.
I feel I'm getting closer.
I touch the walls to break them down.
I worry I'm not doing enough.
I cry for those that suffer.
I am learning what works.

I understand nothing is perfect.
I say perfection is not beauty.
I dream of a peaceful world.
I try to love everyone.
I hope for healing.  I pray for healing.
I am learning what works.

We wrote these poems in my group yesterday.  I wrote mine from my perspective as a clinician with my patients in mind and my struggle to help them break free from their Eating Disorders.  

Monday, March 17, 2014

our green


happy st. patrick's day! 


hope it's full of four leaf clovers and corned beef.

Sunday, March 16, 2014

breakheart: iced over


it was over 50 degrees yesterday so after a very lazy morning, we jumped in the car to head over to breakheart to spend some quality time in the sun.  well, apparently the snow and ice didn't get the news that spring was on it's way, because it was still a plenty.  it didn't phase us though.  we soaked up the sun as we sauntered around, chatted about life, and dreamed of more sun to come.

Saturday, March 15, 2014

KP3

krafting party 3

we ditched the knitting for KP3 to make some spring wreaths instead. so for this party we are stretching the acronym a bit and the k stands for krafting. we also planned the crafting to happen on Pi Day (3.14) so we could have some pie.  yes, we are geniuses!  jeremy made the gf pie (even the crust is from scratch) while we shopped for the supplies.  he's a champ!


cassandra's wreath is on the left and mine's on the right (surprise, surprise).  jessie escaped with her finished masterpiece before we busted the camera out. they all turned out so different and all so fun and beautiful.  i hope our gusto for spring makes it warm up around here.

Wednesday, March 12, 2014

candy is good for my soul


this morning i went to my lovely dietician's office. 

she had me record everything i ate for three days so she could see what vitamins i'm not getting, etc, etc.  well, she was not very pleased with my food choices.  i averaged one veggie and two fruits per day and lots and lots of candy. 

i love my candy.  and since there are so many things i can't have (sooooo many things seem to be glutenous these days), having a stash of candy that i can have gets me through the day.  milk duds, jelly bellies, and cadbury mini eggs make up my current stash. yum yum yum!

needless to say, she encouraged me to increase my fruits and veggies and cut back on the sugar.  on the way home, i stocked up on supplies for spinach smoothies.  that way i'm getting the nutrients and don't have to taste the greens.  i also bought some broccoli to try and cook up. so here we are again, trying to find veggies i can stand to eat.  luckily, i was only planning on seeing her a couple of times to get me on my feet with the celiac stuff and i don't have any future appointments.  i don't want continuous lectures on eating veggies.

fruit update:  i recently branched out to include apples in my realm of foods i eat... gala apples to be exact.  so my fruits are expanding like wildfire!  i will consider it my food victory for the month.

Sunday, March 9, 2014

sunny skiing


yesterday was gorgeous... blue skies with beautiful cloud patterns and sun sun sun! so naturally we spent the day outside, cross country skiing with some friends.  we were roasting out there under the sunny skies.  it is getting me all excited for spring.


when my brothers came to visit, they brought out my gear i used in high school.  (fun fact: i was on the high school cross country ski team when we lived in wyoming.)  i LOVED being on my skate skis this weekend.  i can go so much faster than classic skiing.  it seriously made me fall in love with the sport all over again.  next ski season is going to be amazing!

Thursday, March 6, 2014

LENT!!


lent started yesterday.

i'm giving up playing on my phone when i am in bed.  it can distract me from falling asleep and i would much rather focus on getting some shut eye than seeing if anybody adding something to instagram the last 10 minutes.  so i will now leave it in the kitchen. 

just setting limits and trying to find balance.  that's what life is all about.

what are you giving up?

Wednesday, March 5, 2014

stroke scare


the last couple of days have been a little crazy.

it all started monday night at work.  i had a headache and then things started getting weird.  i couldn't feel my right arm, then my vision started getting wacky (silvery things in my peripherals and in my direct line of vision), the the right side of my face was going numb, and then my speech was all slurred and i wasn't making any sense when i tried to talk.  it was a good thing i wasn't running any groups or meeting with clients.

i called jeremy and left a super creepy message asking him to come and get me because i didn't think i could drive home.  my friend at work heard me leaving the message and decided the hospital was the best place for me.  so we pow-wowed with some other co-workers, took my vitals, and she took me to the ER.  jeremy took the T to my work, found the car, and drove over to meet us. 

i have had symptoms like this before.  once.  about 5.5 years ago, right after i was diagnosed with my blood clot.  so naturally we thought it was a stroke and my dad took me to the ER.  turns out it was a complex migraine.  i knew the same thing was happening this time and with my blood clot history the symptoms are just too scary to mess around with, so off to the ER we went.

as i was checking into the ER (at 7:20) my symptoms began to subside and i was left with a giant headache.  they did some neuro tests, an EKG, took my blood, and had me wait forever!  they did a CT scan at about 10:30 and said the results would be out in hour.  an hour and half later, i'm still in the ER lobby so i go ask what's going on and tell them i feel fine.  they said they want me to see the dr and i have to wait.  boo!

so i wait.  and get frustrated, because i feel ok, and they won't let me leave.  don't they know i have work at 8:00 in the morning?  i have to get home.  the lobby is just about empty and they finally call my name back at about 1:00 am.  i get to lay down on a bed... HOORAY!  i sit there for a while and wait some more.

a doc comes, does some neuro testing and he tells me they are keeping me overnight for observation and we will do an MRI in the morning.  i get jeremy, tell him the news, and we make a plan for him to go home and get some rest and come back for me in the morning.  he heads home about 2:30 am.  i'm feeling like this is all pretty dumb, because i feel fine now.  but i wait some more and text my boss to tell her i'm still in the hospital and being admitted for the night. (she asked me to update her and she didn't respond, so luckily she was asleep.)

and here's tired and angry katie at 2:30 am:


i get transferred to a room, and get tucked into bed by a lovely nurse assistant at about 4:00 am and i am trying to be as nice as i can to put myself in a more pleasant mood.  good thing i wore comfy slacks and a sweater to work that day and not a skirt, because i just slept in my clothes.  the nurse comes in at 5:15 to ask me tons of questions and all i really want to do is sleep.  after 30 minutes, she has the answers she needs and leaves me in the dark to get some rest.

i woke up at about 6:50 listening to people in the hall. shortly after i met my new nurses and nurse assistant and got plans for the day - get an MRI, meet with the neurologist.  at 8:00 am they brought me a delicious gluten-free breakfast which included an Udi blueberry muffin that was just amazing, rice chex, oj, eggs, and milk.  the lady across the hall wasn't so lucky.  she kept asking where her breakfast was while i devoured mine (don't worry she couldn't see me... i could just hear how hungry she was).  gluten-free has it's perks, when it gets you served first and with a hot plate!

at about 9:00 am they stuck me with an IV needle (that subsequently never got an IV, thank you very much for that pain) and wheeled me down to get an MRI.  jeremy arrived right as i was going in and had to wait 45 minutes before i was done to see me.  i listened to the radio and practiced my deep breathing during the MRI and found the experience to be pretty relaxing.

after the MRI, i finally got to see jeremy, it's almost 10:00 at this point.  they took me to another observation place, but didn't have a room for me, so i was in the hall.  which i was fine with.  if i get a room they might forget about me or let me sit tight for longer than i want.  i chat and laugh with jeremy while we wait for the neurologist to come and tell us the results of the MRI. 

the neurologist comes carrying his little doctor case which is adorable.  he says they are all great and that it is indeed a complex migraine.  (i know, doc, i know.)  he was helpful though and gave me some tips to differentiate a complex migraine from stroke.  now i have a better idea of what to look for, so that was really helpful.  he said that i might end up coming to the ER every time i experience one to appease the people around me since it can be pretty scary, which i can totally see happening.

he left us around 11:00 i would say.  we chatted it up with the nurses since my bed was right next to them.  one nurse was a pretty big fan of ours.  she said we had a special aura and she could totally picture us laughing together in our old age.  (how cute!)  and we waited some more, chatted, laughed, made phone calls, and texted family with updates.  we waited for a couple more docs to come check me out and then we were finally free to go at 12:30.

and that my friends, is how we spent jeremy's birthday eve and birthday morning.

we both got the rest of the day off of work and school so we headed home, took naps - because we were so exhausted!, went to a movie, opened presents, went out to eat, and ate cake.   it was fun to have the day together, as unexpected as it was.  

Tuesday, March 4, 2014

Birthday Boy!


Happy Birthday to this handsome boy!


28 looks so good on you! Seriously... I lucked out.

Here are 28 reasons why I think you are the absolute best: 

You have a kind soul. You are hilarious. You go out of your way to help other people. You stick to your values. You listen. You are caring.  You do the laundry. You play basketball like a pro. You are modest in your accomplishments. You support and encourage me. You are an awesome brother to my brothers. You have a strong testimony of God. You pay the bills. You prefer just hanging out with me. You work hard. You serve with your whole heart. You remind me to laugh. You love babies. You are easy going. You are just so handsome. You are smart. You love ice cream as much as I do. You support my scooter fund. You are always smiling. You take care of things. You are honest. You are loving. And you are MINE, forever!

 Hope your day ROCKS, sweetheart!

Monday, March 3, 2014

all three


This weekend my brothers came to play!!
 (warning: picture overload)

It was the first time we were all together since Christmas of 2011, so it was about time.  We loved every minute of it.  Here's what we did:

Friday
I had to work (boo!).  So the boys went to the Museum of Science.  When I caught up with them, we walked around Back Bay to see the sites and had dinner at Joe's American Bar and Grill on Newbury Street.  Then we went home, watched a movie, and ate popcorn. 

Saturday

We filmed our dance video at Fenway Park while we waited for our tour to start.  Then we went on the tour, which I totally recommend!!  They do an awesome job - it's over an hour, they tell you great stories, and they take you to the Green Monster, the visiting locker room, the press box, and a museum of memorabilia at the end.  You have to go!  

After Fenway we got some grub at Tasty Burger next to Fenway (hooray for gluten free buns!).  Then we headed into the heart of Boston to start our journey on the Freedom Trail.  We had some hot chocolate pit stops because of the cold so we were able to survive.

Stroke of Luck:  We arrived at the Old North Church (where the lanterns were lit) and we found it to be closed.  So we sat on the steps and wallowed in our sorrows.  Then a man arrived that was on the other side of the locked gate.  He clearly had a key, so naturally I started talking to him.  Well, he is my new favorite person, because he let us in!  He gave us the whole historical spiel and let us walk around.  It rocked.

After the freedom trail, we went to see 3 Days to Kill.  It was intense at parts and pretty funny, too.  The boys loved it.  After our movie we went to The Cheesecake Factory for a very late dinner.  And then we headed home to get some sleep.


Sunday

We went to church.  (How amazing is it that we were on time with 4 adults and one bathroom!!?)  After church we headed up the coast to beautiful Marblehead and climbed around Castle Rock.  It was a great excuse to take some much needed pictures with my brothers with the beautiful scenery all around.  I love that rock!  I foresee Sunday picnics here in the spring!

After we had our fun of climbing around and checking out the mansions of Marblehead we made our way home.  There, the boys helped Jeremy out with a glutenous lasagna we had in the freezer and then they had to pack up their gear. We had such a great time!  My family rocks.  I hope they can come visit me soon.  If I had it my way (and if airfare didn't cost an arm and a leg) I would want them to come visit me all the time!  

Thanks for the fun boys.  It sure felt good to be together.